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Tarlov Cyst Disease Doctors List
Important Information for Patients:
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The physicians listed on this page have either expressed interest in, or have been identified through patient experience as having knowledge of Tarlov Cyst Disease.
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This list is provided as an informational resource only.
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The Tarlov Cyst Society does not endorse, recommend, or guarantee any specific physician, treatment, or outcome.
We are not involved in clinical decision-making, and we are unable to intervene in referral processes, appointment timelines, or individual patient care.
We strongly encourage all patients to:
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speak directly with physicians
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ask detailed questions about experience, approach, and outcomes
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make decisions based on their own individual needs and circumstances
Every patient’s situation is unique, and it is important to seek care that is appropriate for your specific condition.
For Medical Professionals:
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If you're a medical practitioner who is interested in learning more about how you can provide informed Tarlov Cyst Disease care, please contact sherri@tarlovcystsociety.com, and she'd be happy to connect you with specialists willing to help you learn more about Tarlov Cyst Disease.
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AUSTRALIA
Dr. Kirsty Hamilton, Sydney, NSW (Will do phone consult)
https://centralneurosurgery.com.au/drkirstyhamilton/
Dr. Yannis Sergides, Sydney, NSW (Will do phone consult)
https://sydneyspinesurgeon.com/
Dr. Timothy Steele, Sydney, NSW (Will do phone consult)
https://www.drtimothysteel.com.au/
Dr. Gert Tolleson, Brisbane, Queensland (Will do phone consult)
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BELGIUM
Dr. Ricky Rasschaert, M.D. Neurosurgeon
Head of Department at AZ Rivierenland
Antwerp, Belgium
Dr. Rasschaert can be reached by mail and email, while medical imaging can be sent through WeTransfer
Email: ricky@dr-rasschaert.be
Commonly treats patients in Belgium, the Netherlands, Northern France, and the UK
Mailing Address: Boniverlei 28
2650 Edegem
Belgium​
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BRAZIL
Dr. Aluisio Arantes, M.D.
Belo Horizonte
Brazil
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CANADA
Alberta
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Spine Triage and Access Clinic Foothills Medical Centre, University of Calgary
Phone - 403-944-1854 (Press 7 for Spine Triage Clinic)
Fax - 403-283-2270
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British Columbia
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Dr. Navraj Heran, Neurosurgeon
Spine Clinic, Royal Columbian Hospital
Phone: 604 520 1120
Ontario
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Dr. Kieran Murphy, Interventional Neuroradiology
Toronto Western Hospital
Toronto kieran.murphy@uhn.ca
001 416 603 5800 Extension 2393
https://www.uhnresearch.ca/researcher/kieran-murphy
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Quebec
Klostranec, Jessie - Interventional Neuroradiology
McGuill University - The Neuro (Montreal Neurological Institute – Hospital)
​3801 University Street
Montreal, PQ. Canada
Phone: General Hospital Line - 514-398-6644
https://www.mcgill.ca/neuro/jesse-klostranec-md-phd
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CYPRUS
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Dr. Frank Feigenbaum - AIMIS SPINE
Nicosia, Cyprus
https://aimis.com/international/
Visit their website and submit your MRI for review to get the assessment process started
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FRANCE
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Dr. Georges Zollner, M.D. - Interventional Neuroradiologist Department of Neuroradiology
The University Louise Pasteur, 67098 Strasbourg, CEDEX,
Strasbourg, France
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INDONESIA
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Yunus Kuntawi Aji- Neurosurgeon
Mayapada Hospital Kuningan - South Jakarta, Indonesia
https://mayapadahospital.com/find-doctor/detail/dr-yunus-kuntawi-aji-mkedklin-spbs
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ITALY
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Dr. Paolo Marcetti, M.D. - Neurologist with specialty in Pain Management
delll’ Ospedale San Raffaele di Milano Milan, Italy
Phone: 011 39 02 2643 3206
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NEW ZEALAND
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Dr Robert Aspoas, Neurosurgeon
Auckland NEW ZEALAND
Allevia Neurosurgery
Allevia Hospital Ascot, 90 Green Lane East, Remuera, Auckland
Phone (09) 520 9500
Fax (09) 520 9501
Healthlink EDI
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UNITED STATES​
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Kim, W Choll M.D. PH.D, Orthopaedic Surgeon
Excel Spine Center
www.excelspine.com
6719 Alvarado Road, Suite 304, San Diego, CA 92120
Phone/Text: (619) 344-6918
Fax: (619) 333-6029
Dr. Frank Feigenbaum, M.D. Neurosurgeon
Feigenbaum Neurosurgery P.A.
Energy Square 1, 4925 Greenville Ave., Suite 1307 Dallas, TX 75206
214 351 8450
https://frankfeigenbaum.com
Dr. Rudolph J. Schrot, MD MAS FAANS. Neurosurgeon
Sutter Medical Group 2800 L Street, Suite 500
Sacramento CA 95816
Phone: 916 454 6850 or 1 800 250 3208
Contact Mindy Watkins 916 454 6850
https://www.sutterhealth.org/services/back- spine/tarlov-cysts
Dr. Fraser C. Henderson, Sr. M.D. Neurosurgeon
The Metropolitan Neurosurgery Group LLC
1010 Wayne Ave. Suite 420 Silver Spring, MD 20910
Contacts:
For appointment call Tatiana at 301-654-9390
For technical questions call Vivienne at 301-557-9049
http://metropolitanneurosurgery.org
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Dr. Timothy F. Witham, MD - Spine Surgery/Neurosurgery
1800 Orleans St, Baltimore, MD 21287
Phone: 410-955-5000
https://www.hopkinsmedicine.org/
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Khan, Majid Aziz MD
The Johns Hopkins Hospital
Interventional Neuroradiology
601 North Caroline Street - Floor 7
Baltimore, MD 21287
Phone: 1-410-614-2227
https://www.hopkinsmedicine.org/interventional-neuroradiology
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Dr. William C. Welch, MD, FACS, FICS, Neurosurgery
Penn Neurosurgery Pennsylvania Hospital
Pennsylvania Hospital
Spruce Building, 3rd Floor
801 Spruce Street
Philadelphia, PA 19107
A facility of Pennsylvania Hospital
1-800-789-7366
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Dr. Wouter I. Schievink, MD. Neurosurgeon
Specialty: Neurosurgery | CSF Leak Program | Spontaneous Intracranial Hypotension (SIH) / spinal CSF Leaks
Cedars-Sinai
Neurosurgery Division - 127 S San Vicente Blvd Pavilion, Suite A6600, Los Angeles, CA 90048
Clinic/Program: Cedars-Sinai CSF Leak Program
https://www.cedars-sinai.org/locations/neurosurgery-102.html
Phone: (310) 423-7900
Email (program inquiries): Wouter.Schievink@cshs.org
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