top of page
.png)
Behind The Tarlov Cyst Society: The Story Behind the Organization
When people visit the Tarlov Cyst Society website, they often see educational articles, research updates, physician information, patient resources, and advocacy campaigns. What they don't always see is the person working behind the scenes to help make it all happen—or the questions that guide every decision we make.
-
Jun 114 min read
Tarlov Cysts and Interstitial Cystitis: Is There a Connection?
Many people diagnosed with Interstitial Cystitis spend years searching for answers about chronic bladder pain, urinary urgency, pelvic pressure, and painful sitting. What many patients don’t realize is that some of these symptoms may overlap with symptomatic Tarlov Cyst Disease.
-
May 233 min read
Tarlov Cyst Surgical Care Now Available in Indonesia
The Tarlov Cyst Society has identified a spine surgeon in Indonesia who is actively treating patients with symptomatic Tarlov Cysts, marking a potential expansion of access to care in a region where options have historically been difficult to find. This development signals that Tarlov Cyst care is now available in Indonesia for patients seeking informed treatment options.
-
Apr 272 min read
A Urologist’s Perspective on Pelvic Pain and Tarlov Cysts–Related Symptoms
People living with Tarlov Cyst Disease often hear the same frustrating message: “Your symptoms don’t fit neatly into one box.” “Your imaging doesn’t explain your pain.” “This must be pelvic floor, bladder, or anxiety-related.” That’s why a recent interview published by UroToday deserves attention from our community. In this interview , Dr. Elise De — a urologist with extensive expertise in pelvic pain — openly acknowledges something Tarlov cyst patients have known for years:
-
Dec 18, 20253 min read
bottom of page