When it comes to understanding Tarlov Cyst Disease, one of the most confusing—and often overlooked—aspects is how symptoms can vary depending on where the cysts are located. These fluid-filled sacs form on nerve roots along the spine, and their impact depends on which nerves they’re pressing against or damaging.

Living with Tarlov Cyst Disease can feel like you're living within a puzzle full of missing pieces. For many patients, symptoms reach far beyond low back or pelvic pain. Burning limbs, dizziness, brain fog, bowel or bladder dysfunction, and vision changes may seem unrelated—until you look deeper.

n a compelling new publication, Dr. Abdelali Yahia details the case of a 38-year-old woman who endured years of bladder dysfunction, perineal numbness, and sexual impairment.

Spontaneous regression of Tarlov cysts is extremely rare. According to the authors, only one previous case has been documented in medical literature.

Medical professionals must not rule out Tarlov Cysts simply because a patient is young, male, or has “too rare” a condition. The presence of Ehlers-Danlos Syndrome increases the risk of spinal meningeal cysts, but diagnosis requires suspicion, detailed imaging, and a willingness to look beyond the expected.

We’re proud to introduce the “Get Support” section on the Tarlov Cyst Society website—a centralized hub of information, resources, and tools designed to empower you with knowledge and guidance.

By Leanne Marks, Victoria, AustraliaPublished by the Tarlov Cyst Society Focus Keyword: Tarlov Cyst symptoms Meta Description: A Sudden...

Jodey’s diagnosis of an inoperable (according to the story) perineural cyst came in 2016—less than a year before her death. It contributed to escalating pain and disability, and yet there’s no indication that her condition was treated as the serious neurological disease that it is.

Living with a rare disease often means struggling for validation.

This emerging science is especially relevant to people living with symptomatic Tarlov Cyst Disease.

This approach incorporates both imaging and clinical assessments to determine if a Tarlov Cyst is responsible for a patient's symptoms.

Imagine living in relentless pain, knowing exactly what’s causing it, yet being told time and time again that it’s not real. This is the rea

If sitting down feels like you’re sitting on a rock, or if you’ve struggled with persistent low back pain, you’re not alone.

For decades, Tarlov Cysts—fluid-filled sacs that develop along spinal nerve roots—have been dismissed as “incidental findings” in...

The next critical step in advancing our understanding of Tarlov Cyst Disease is creating the world’s first Tarlov Cyst Patient Registry.

Living with Tarlov Cyst Disease can be an uphill battle, fraught with challenges ranging from misdiagnosis to dismissal by medical...

Title: Understanding the Risks: Surgery for Tarlov Cysts For individuals living with Tarlov Cyst Disease, exploring treatment options can...