Research has proven that approximately 20% of identified Tarlov Cysts are symptomatic, capable of causing severe, life-altering pain and neurological symptoms. Despite this, awareness within the medical community remains limited. That’s exactly why the Tarlov Cyst Society created the Tarlov Cyst Disease Education Kit — a tool designed to help both patients and healthcare professionals understand the true nature of this condition and begin bridging the gap between research an

For years, patients were told there was “no treatment available for Tarlov Cysts.” However, published research now documents a range of approaches, from conservative management to minimally invasive interventions and microsurgic

When it comes to understanding Tarlov Cyst Disease, one of the most confusing—and often overlooked—aspects is how symptoms can vary depending on where the cysts are located. These fluid-filled sacs form on nerve roots along the spine, and their impact depends on which nerves they’re pressing against or damaging.

Living with Tarlov Cyst Disease can feel like you're living within a puzzle full of missing pieces. For many patients, symptoms reach far beyond low back or pelvic pain. Burning limbs, dizziness, brain fog, bowel or bladder dysfunction, and vision changes may seem unrelated—until you look deeper.

n a compelling new publication, Dr. Abdelali Yahia details the case of a 38-year-old woman who endured years of bladder dysfunction, perineal numbness, and sexual impairment.

Spontaneous regression of Tarlov cysts is extremely rare. According to the authors, only one previous case has been documented in medical literature.

Medical professionals must not rule out Tarlov Cysts simply because a patient is young, male, or has “too rare” a condition. The presence of Ehlers-Danlos Syndrome increases the risk of spinal meningeal cysts, but diagnosis requires suspicion, detailed imaging, and a willingness to look beyond the expected.

Living with a rare disease often means struggling for validation.

This emerging science is especially relevant to people living with symptomatic Tarlov Cyst Disease.

This approach incorporates both imaging and clinical assessments to determine if a Tarlov Cyst is responsible for a patient's symptoms.

For decades, Tarlov Cysts—fluid-filled sacs that develop along spinal nerve roots—have been dismissed as “incidental findings” in...

Living with Tarlov Cyst Disease can be an uphill battle, fraught with challenges ranging from misdiagnosis to dismissal by medical...