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CURRENT PROJECTS
The Tarlov Cyst Society is dedicated to developing resources, educational materials, and advocacy projects focused on advancing understanding, care, and treatment options for those affected by Tarlov Cyst Disease.
Join Us in Our Mission
Our progress relies on the support of volunteers and donors who share our vision. If you’re passionate about making a difference, we invite you to contribute your time, skills, or funds to help us develop essential projects like our Awareness Campaigns, Mailout Campaigns, and a Patient Registry—all aimed at improving lives and increasing understanding of Tarlov Cyst Disease.
PROJECT 01
Social Media Awareness Campaign
A social media awareness campaign is crucial to the Tarlov Cyst Society’s mission. By reaching a broad, engaged audience, we can educate the public, connect with healthcare providers, and ensure that Tarlov Cyst Disease is recognized, not overlooked. Increased awareness can lead to faster diagnoses, more funding for research, and greater support for patients. Social media allows us to share vital information, patient stories, and advocacy efforts in real time, amplifying our impact and helping create a world where Tarlov Cyst Disease receives the attention it deserves.
PROJECT 02
Mailout Campaigns
A Mailout Campaign is essential for reaching medical professionals with the latest research on Tarlov Cyst Disease, emphasizing the need for improved patient care. By directly delivering educational materials to doctors, clinics, and healthcare institutions, we ensure that advancements in understanding and treatment options are on their radar. These campaigns help bridge the gap between research findings and clinical awareness, encouraging medical professionals to recognize, diagnose, and support Tarlov Cyst patients more effectively.
PROJECT 03
Patient Registry
A Patient Registry for Tarlov Cyst Disease is vital for advancing research, understanding patient experiences, and improving treatment options. By compiling detailed data on symptoms, treatments, and outcomes, we can identify patterns that guide future care and support medical research. This registry will provide insights into how Tarlov Cyst Disease progresses, track the effectiveness of treatments, and ultimately help healthcare providers make informed decisions. Building this resource is essential for shaping the future of Tarlov Cyst care and advocacy.
If you'd like to know more about how you can become involved, please email info@tarlovcystsociety.com with the words "Patient Registry" in the subject line.
MAKE A DONATION
“Fuel the Movement”
Awareness isn’t optional. It’s essential. Your donation powers our campaigns, connects isolated patients, and puts Tarlov Cyst Disease on the map. Help fuel a movement that’s long overdue.
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