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Misdiagnosed and Dismissed: How One Australian Woman Discovered Her Tarlov Cyst Was the Cause of Her Symptoms
By Leanne Marks, Victoria, AustraliaPublished by the Tarlov Cyst Society Focus Keyword: Tarlov Cyst symptoms Meta Description: A Sudden...
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Jun 163 min read
When Systems Fail: Jodey Whiting’s Story and the Danger of Dismissing Tarlov Cyst Disease
Jodey’s diagnosis of an inoperable (according to the story) perineural cyst came in 2016—less than a year before her death. It contributed to escalating pain and disability, and yet there’s no indication that her condition was treated as the serious neurological disease that it is.
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Jun 153 min read
Understanding the Emotional Landscape of Tarlov Cyst Disease
Living with a rare disease often means struggling for validation.
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May 253 min read
Tarlov Cyst Disease & Its Comorbidities: Understanding the Bigger Picture
Tarlov Cyst Disease & Its Comorbidities: Understanding the Bigger Picture
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Feb 55 min read
Patient Experience: The Reality of Living With Tarlov Cyst Disease
Imagine living in relentless pain, knowing exactly what’s causing it, yet being told time and time again that it’s not real. This is the rea
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Jan 313 min read
Do You Have Unexplained Low Back Pain?
If sitting down feels like you’re sitting on a rock, or if you’ve struggled with persistent low back pain, you’re not alone.
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Dec 7, 20243 min read
Tarlov Cysts: Busting The Medical Myth
For decades, Tarlov Cysts—fluid-filled sacs that develop along spinal nerve roots—have been dismissed as “incidental findings” in...
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Dec 3, 20243 min read
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