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The Tarlov Cyst Society is Now a Registered Charity
- May 24
- 2 min read
We’re thrilled to announce that the Tarlov Cyst Society has officially been approved by the Canada Revenue Agency (CRA) as a registered charity! Our Charitable Registration Number is: 799489968RR0001
This recognition is more than just a legal designation—it’s a major step forward for our mission to support, educate, and empower individuals living with Tarlov Cyst Disease in Canada and around the world.
🧭 What This Means for Our Community
Having the Tarlov Cyst Society registered as a charity brings new opportunities to grow our impact in ways that directly benefit the people we serve. Here’s what this new status makes possible:
Tax-Deductible Donations
We can now issue official tax receipts for all eligible donations. This helps encourage more people and organizations to contribute, knowing their support not only helps a vital cause—it may also reduce their taxable income.
Grant Eligibility
We now qualify for a broader range of grants and funding programs—both public and private—that are only available to registered charities. This opens the door to long-term sustainability and more robust programming.
Greater Trust & Transparency
Charitable status signals to the public, healthcare professionals, and institutions that our work is held to a high standard of accountability and public benefit. It strengthens our credibility as we continue advocating for better care, awareness, and research.
📦 What’s Next?
This milestone allows us to accelerate several key initiatives, including:
Launching Canada’s first Tarlov Cyst Disease mailout campaign for healthcare providers
Expanding our patient education materials and outreach tools
Developing the world’s first international Tarlov Cyst Patient Registry
Securing funding for our website development, awareness campaigns, and advocacy work
💙 How You Can Help
If you’ve ever thought about supporting the Tarlov Cyst Society—now is the perfect time. Every dollar makes a difference and now qualifies for a tax receipt.
➡️ Donate today ➡️ Or contact us at info@tarlovcystsociety.com to learn more about volunteering or sponsorship opportunities.
✨ A Moment of Gratitude
This achievement wouldn’t have been possible without the ongoing strength, vulnerability, and dedication of the Tarlov Cyst Disease patient community. Your voices—and your stories—continue to guide this movement forward.
Thank you for believing in this work. Thank you for helping build something that lasts.
Let’s keep going—together.
With gratitude,
Sherri L. Jones
Founder | Tarlov Cyst Society
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